The article below makes one pause…


Associated Press

The largest U.S. study of autism has found that the troubling condition is more common than previously understood.

About one in 150 American children has autism, U.S. health officials said Thursday, calling the troubling disorder an urgent public health concern that is more common than they once thought.

The new numbers are based on the largest, most convincing study done so far in the United States, and trump previous estimates that placed the prevalence at 1 in 166.

The difference means roughly 50,000 more children and young adults may have autism and related disorders than was previously thought.

Government scientists declined to call the results a complete surprise: The new estimate is on the high end of a prevalence range identified in other recent studies, they said.

But one advocate said the study should cause policy-makers and the public to revise how they think of autism.

“This is a greater national health care crisis than we thought even yesterday,” said Alison Singer, spokeswoman for Autism Speaks, the nation’s largest organization advocating services for autistic children.

The study should fuel efforts to get the government to spend hundreds of millions of additional dollars for autism research and services.

“This data today show we’re going to need more early intervention services and more therapists, and we’re going to need federal and state legislators to stand up for these families,” Singer said.

The study by the U.S. Centers for Disease Control and Prevention was based on 2002 data from 14 states. It calculated an average autism rate 6.6 per 1,000, compared to an estimate last year of 5.5 in 1,000.

The new research involved an intense review of medical and school records for children and gives the clearest picture yet of how common autism is in some parts of the country, CDC officials said.

The results suggest 560,000 children and young adults have the condition.

However, the study population is not demographically representative of the nation as a whole, so officials cautioned against using the results as a national average. The study doesn’t include some of the most populous states, like California, Texas and Florida.

Also, the study does not answer whether autism has recently been on the rise – a controversial topic, driven in part by the contention of some parents and advocates that it is linked to a vaccine preservative. The best scientific studies have not borne out that claim.

“We can’t make conclusions about trends yet,” because the study’s database is too new, said Catherine Rice, a CDC behavioral scientist who was the study’s lead author.

Autism is a complex disorder usually not diagnosed in children until after age 3. It is characterized by a range of behaviors, including difficulty in expressing needs and inability to socialize. The cause is not known.

Scientists have been revising how common they think the disorder is. Past lower estimates were based on smaller studies. The study released Thursday is one of the first scientific papers to come out of a more authoritative way of measuring it.

“This is a more accurate rate because of the methods they used,” said Dr. Eric Hollander, an autism expert at New York’s Mount Sinai School of Medicine.

The study involved 2002 data from parts or all of 14 states – Alabama, Arizona, Arkansas, Colorado, Georgia, Maryland, Missouri, New Jersey, North Carolina, Pennsylvania, South Carolina, Utah, West Virginia and Wisconsin.

Researchers looked specifically at children who were 8 years old because most autistic kids are diagnosed by that age. The researchers checked health records in each area and school records when available, looking for children who met diagnostic criteria for autism. They used those numbers to calculate a prevalence rate for each study area.

Included were autism-linked conditions like Asperger disorder, which some experts say might partly account for a higher rate.

Dr. Fred Volkmar, director of the Child Study Center at Yale University, said the educational records researchers relied on in some states may be misleading. Sometimes, if a child has problems that seem like autism, parents will push for an autism label to get additional educational services, he said.

Rates varied dramatically among states, in some cases. The rate was 3.3 per 1,000 in the northeastern Alabama study area and 10.6 per 1,000 in the Newark, N.J., metro area.

Researchers say they don’t know why the rate was so high in New Jersey. They think the Alabama rate was low partly because of limited access to special education records.

The study was not an effort to find the cause of autism, still a point of debate. While many advocacy groups blame the vaccine preservative thimerosal, scientists are putting more focus on possible genetic causes, according to a recent Stanford University study.

1 thought on “U.S. health officials say autism rate about 1 in 150

  1. Show us the Money – Act now!

    Congress passed the Combating Autism Act but hasn’t put any money behind it. We only have until next week to act, or wait until October 1, the start of FY 08.

    The Combating Autism Act (Public Law 109-416) authorizes $1.147 billion to be spent on research, education and awareness. ($147 million this year and $1 billion over the next 4 years) most of the funds go to the National Institutes of Health (NIH), Center for Disease Control (CDC) and the Department of Health and Human Services (HHS).

    But none of these agencies have appropriations for the current fiscal year (FY 07). Next week Congress must pass a continuing resolution to keep all federal government agencies running, except the Department of Homeland Security (DHS) and most of Defense, the only two agencies with appropriations this year.

    The continuing resolution, as it stands now, allows for increased funding for some federal agencies and programs, including NIH, but there is no mention of Autism. (There is a proposal to increase funding for TB, Malaria and HIV/AIDS overseas, other countries’ health problems. There is also a supplement request for this year to spend more than $1 billion per week in Iraq.)

    Authorization without appropriation means no money can be spent. Increased spending for Autism will have to wait until the start of the new fiscal year, October 1.

    Write to your senators and representative now, call them, raise some hell.

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